Exploring parenting practice and challenges of parents of children with Cerebral Palsy

Abstract

This study attempts to explore and learn about the knowledge and perceptions of parents in Bangladesh who have children with cerebral palsy (CP), their mental health, the caregiving burden they encounter, and the coping strategies that they use. A qualitative approach was followed to conduct the study. In-depth interviews and focus group discussions were conducted with ten parents (five mothers and five fathers) to gain insight into the personal experiences of these participants. The result shows that all the parents at the beginning of their child’s CP diagnosis did not have any information on the condition, thus they faced emotional difficulties, stress, and anxiety after the diagnosis. Through the years, parents discussed their child’s condition with the healthcare providers and slowly gathered more knowledge about the disorder and its management. Despite this progress, parents continued to struggle with several issues such as financial constraints, availability of a specialized service, and stigmatization. Parents have reacted to the situation with feelings of depression, anxiety, and loneliness and this is damaging their mental health. However, family support, social networks, and professional support turned into valuable assets in coping with these problems. The results emphasize the necessity for increased awareness, improved healthcare services, and comprehensive support for families of children with CP in Bangladesh.